FACTS OF MY LIFE

Facts of Life

Reaching the tender young age of 75 years Young. After losing my home to fire then moving next door to the chapel and Parrish house, after the 7 days trauma diarrhea from sensory overload, that my son suffered resulting from the fire, being autistic, being left in a car, while fireman and police were all around. Those 7 days were hard for the autistic son of mine.

Then settling in, the month of January having just passed our Christmas debacle, this then was unsettling, and having settled in, discover very poor water pressure to the second floor in which we lived since the first floor was in mid renovation, with the water pressure not bringing the water to the second floor, the buckets taken by my wife of 22 years, up to the second floor, finally in the month of February the second day she went to her reward, these are The Facts of Life, I know because this is my life.

Having discovered the treachery that was everywhere around me by my many circumstance and happenstance, my whole existence was focused on care of my son. Taking all this in, the loss of a home the loss of a mother reaching into the month of June, the ageing out at 21 from his Special Needs school, cost him extreme anxiety so that he would go to the hospital almost every other day, in the ambulance, from the school and from the house.

Finally when his insomnia was more than I could handle since the medication maritzapine was causing him severe distress and much agitation, I then decided to go to the hospital to ask for a new prescription. Once there we were denied, and that night he had to, once again at 3 a.m., take the same medication.

Next day when he awoke his agitation was severe. He was spilling liquids out of the refrigerator and attempting to run out of the house into the street. Upon holding him by his hands to keep him from walking out of the house, holding his wrists, one in each of my hands. Caused him to snap, and break his arm.

So upon us arriving at the hospital, spending 30 days in his healing, with 24-hour in the hospital room care. I was able to share the room for 30 days, after which I was asked to leave. Upon a return for a visit I discovered that an agency caregiver, was molesting my son by fondling, and so I reported that night, and I reported Saturday morning since the visit was on Friday night, and I reported Monday morning to State Capital Health Department and Justice Department.

The retaliation was, that I was told, that I could not visit my son unless there were three Hospital staff in the room. So this intimidated me in the context of the hospital having a psychiatric ward, and my own clear interpretation that if I went to visit my son I would not be leaving the hospital, and so the intimidation kept me out of court, so that there was petition for the temporary guardianship that removed me as the guardian of my son. This results in my own inability to find his location. Inability to know his whereabouts and therefore not having any visitation privilege, so I lost the right to see my son. Now for a period of 5 years.

I know now that he is in my County and I know who his Medicaid service coordinator is and that as far as my knowledge has taken me. Not knowing anymore and not having Finance for an attorney, and dealing with my everyday existence keeps me in the dark as to the quality of care that my son receives from day today. These are The Facts of Life.

After losing my son and the resulting heart failure that was open-heart bypass surgery, leaving me in a most severely impaired and slow recuperation. Therefore it's very difficult for me to get through one day into the next. Also being a symptom of my bipolar disorder namely insomnia, the medications both prescription and over-the-counter I must use to sleep. Challenge my every morning. I am constantly influx in attempting to control the morning fog.

This morning I was clear somewhat, and I was able to clean my kitchen floor and do some cleaning inside my refrigerator. My roommate, also my wife has Departed leaving me alone and in charge of my surroundings. This morning I was able to accomplish just what I stated. I cleaned my kitchen floor a piece of the bathroom floor and part of the refrigerator. I had a coffee with some coffee cake.

For lunch, and after the cleaning and washing of dishes, I was able to make large slices of rye bread cut thickly and put tomato and lettuce and seafood salad on sandwich. So this is what I was able to do because I had seafood salad in the fridge I had the rye bread on the table and I also had fresh tomato in the refrigerator. I looked in the breadbox, and I find there kaiser roll now a kaiser roll inspires me to cut it up into small pieces to make garlic croutons.

So I look around to Everything I have and I find a use for it. Then I have a sense of worth and command of my environment I know that I can have an apartment for $199 a month because I do. I know that I can go to my medical appointments in an ambulette because I do. I have excellent medical coverage insurance Medicaid and Medicare I am insured by 2 medical insurance I have a sub-standard health home service with a navigator. These are my services in the state of New York I have 24 hours of Medical in home care which I cannot fill but I have not given up trying. These are the facts of my life.

Never losing sight of my dream. My obsession for a minister real enterprise that sets families free inside their home, so they do not have to be victim of mailbox bondage. I have many irons in the fire. To which I must Focus attention to articulate, and move off the drawing board. Out of planning stages and to preliminary stages, and recruiting the teams that will help me to make this dream come true.